10 THINGS YOU DON’T KNOW ABOUT BABY/ CHILD PROOFING FOR AN ASD CHILD.

I’m taking part in the SEND 30 Day Challenge.  Today, day 2 is titled 10 things you don’t know about. 

I’m going to focus this on monster-proofing. You may know this better as Baby-proofing / child safety. The two are similar but NOT the same, as other parents with ASD (and other) diagnosis’ may also understand!

Please note this list is relevant for us here and now. It will change over time as our four year old ASD guy (The Monster) gets bigger, stronger and potentially more vulnerable

1. The best place for a TV is on the wall (RIP TV #1&2) thus eradicating the ability to knock pull it over. NB being on the wall does not make it safe, but rather makes it safER. You may want to consider a TV screen protector or armor to protect it.

2. Many ASD children are runners / escapists. Door and window alarms are quite literally life savers for many. We don’t need to invest just yet but they are definitely on the radar for later.

3. Soft furnishings are scarce and out of reach permanently.  If left within reach they get moved, put in mouth, broken, knocked over, played with etc.   

4. Our hot tap in the bathroom does not work. We have deliberately not fixed it to rule out the risk of The Monster scalding himself. He loves water and playing with taps is a must.

5. We will hold onto The Monster’s hand or use reigns / pushchair / stroller etc when going anywhere. He is not safe enough to walk in public / busy places without either being strapped down or in physical contact. 

6. I conduct Risk Assessments constantly! A visual inspection Is a minimum everywhere we go.  I see danger in things that nobody else will.

7. The Monster’s spatial awareness is limited so he still has a bedrail and  corners and sharp edges around the house are padded to prevent accidents, especially as our space is small and he can he sometimes stims (spins, bounces etc).

8. Medicines / lotions and potions / cleaning equipment etc is locked away or kept completely out of reach. You would probably expect to do this for any 4 year old, but this will likely be a permanent fixture in our house.

9.  Stools, chairs or anything else that can be used as a platform to reach  or climb something are closely monitored. The Monster is fearless and sees no danger in things.

10. With The Monster due to start school and getting a bit more independent we are looking at getting a tracker for him. In the event that he gets lost or runs off he wouldn’t be able to tell people anything as he is non-verbal. We need to be able to locate him quickly if this ever happens.


So there you have it. Are there any things you would add?



#SEND30DayChallenge

Special thanks to https://www.mumoam.co.uk for hosting the challenge. 

The good the bad and the ugly!

Anyone else feel like they are on a permanent rollercoaster!? Here’s all the aspects we would need to incorporate into a design if we had to build our own…

The Good Bits (the bits that make you scream happily, and make your tummy do butterflies!)

1. The Monster is the happiest kid I’ve ever seen.
2. We celebrate the small things.
3. He appears to be completely oblivious to any negativity.
4. He never fails to make us laugh daily.
5. He spreads autism awareness most places he goes!
6. He brings the good out in people.
7. He adapts well to most things.
8. He will randomly do something that will make you burst with pride.
8. On a good day everyone enjoys his company.
9. He can be super loving and cuddly.
10. He can nearly always communicate his needs in one way or another.


The Bad Bits (the bits where your heart pounds and you’re scared / apprehensive about what’s coming next!)

1. Disciplining The Monster is virtually impossible.
2. If you like sleep, you’re screwed!
3. “I know a song that’ll get on your nerves, get on your nerves, get on your nerves. I know a song that’ll get on you’re nerves. Get. Get. Get on your nerves”. AND REPEAT….


The Ugly Bits (the part of the ride you dread, but you know you have to go through it to get to the good bits!) 

1. It’s all just a waiting game. Nobody can give answers about how he will develop.
2. There is a constant battle against the system to get him the support he needs.
3. We still live in a judgmental world, there is a lack of awareness / acceptance and empathy for special needs.

Our ride would have lots of ups and downs, loop the loops and it would be loud and unapologetic.  You would keep coming back to ride it over and over because there are a whole lotta good bits going on that by far outweigh anything else, even if at times it doesn’t feel like it. 

Face of Mum

You will only see this on here once. A tear stained, blotchy face and stinging red eyes. Not an uncommon occurence in reality but a face of mum that you can’t see behind a keyboard.

Today we have spread autism awareness everywhere we have been. It would be great to be able to pick and choose where and when we do this, like I can on here but in reality we can’t turn autism on and off.

This face of mum has been up since 4am this morning (aside from the sleeping with one eye open until finally relenting and putting Cartoonito on at 6am). Apparently that’s an acceptable time to start the day – not for the first time in recent days. A 4am start combined with 3 get ups for The Small One through the night no less. 

This face of mum has been on a playdate with friends this morning.  A pang of jealousy ripped through her for their seemingly normal life. Four year olds playing together nicely in a bedroom. Parents eyes not fixated on every move their child made. She hates that feeling of jealousy but the feeling of guilt for feeling it in the first place is worse. The Monster was golden until it was almost time to go and he spread a sprinkling of autism awareness in the form of running at lightening speed through the house, escaping upstairs and trying to then come down unaided, shouting, refusing to put shoes on, slamming doors, lying on the pavement and refusing to walk to the car.

This face of mum has taken the boys to the Dr’s where The Small One had an appointment for his jabs. Here he spread his usual autism awareness by turning the self check in screen on and off and caused havoc in the waiting room, with the additional excitement of some furniture being brought into the surgery. Game over. Luckily they were then given a private room to wait in and the lovely nurse gave The Monster a pack of sweets whilst The Small one had his injections. After playing with the taps and a splash of water around the room later they left having only received a couple eye rolls from the elderly couple in the waiting room.

This face of mum instinctively let go of the pushchair for 3 seconds max to check The Monsters hands whilst walking home and he rubbed his hands through a thorn bush. In those three seconds (max) the pushchair had free rolled into the road and was still moving. Thankfully there were no cars coming.

This face of mum has received post for yet another hospital appointment for The Small One. As usual on a day The Monster is not in nursery. This mum can’t deal with thinking about that today.

This face of mum has had emails from The Monster’s Educational Psychologist today delaying an appointment made for June by almost a month and also wants another meeting in less than a weeks time, looks like she will be facing that one without Dad again.

This face of mum has packed the boys in the car and driven until they have both fallen asleep just so she can catch her breath today.

Today, this mum craves normality, an easier carefree life for her babies.